July 11, 2009
State failing those with brain injuries, advocates say
Chris Dorst
B.J. Berkhouse receives physical therapy from occupational therapist Kenny Stowers at CAMC's Physical Therapy & Sports Medicine Center. Last year, Berkhouse suffered a traumatic brain injury when a drunken driver hit him in downtown Charleston.
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CHARLESTON, W.Va. -- B.J. Berkhouse can't remember everything that happened the night his life changed. But he knows the date.

"Six-seven-eight," he said in a slow, slurred voice. 

June 7, 2008.

That's when he went downtown for a birthday party. Around 1 a.m., a drunken driver drove onto the sidewalk of Capitol Street and struck him. For three weeks, Berkhouse lay in a coma. He suffered facial fractures, a stroke and a traumatic brain injury.  

Last month, Melissa Newman was sentenced to a year in jail after pleading guilty to DUI causing injury and other charges related to the accident.   

For Berkhouse and his family, the ordeal is far from over. A week ago, the 31-year-old left his home state for intensive rehabilitation at Lakeview Virginia NeuroCare in Charlottesville, Va.

"You can't stay here and get better," said Berkhouse's girlfriend, Lindsay Bolar. "You have to go out of state."

Advocates say the state Department of Health and Human Resources has failed people with traumatic brain injury -- even after decades of legal battles. 

This spring, Kanawha Circuit Judge Duke Bloom began a series of hearings related to a decades-old case involving DHHR's services for people with traumatic brain injuries and overcrowding at the state's two psychiatric hospitals.

Many advocates believe court action is the only way to make DHHR step up its efforts, said Mike Davis, president of the Brain Injury Association of West Virginia.

"Health and Human Resources hasn't done what they are supposed to do," he said. "People are suffering because of this."  

'Nobody expects it'

With traumatic brain injury, those who have never experienced disability are thrust into an overwhelming situation, said Clarice Hausch, director of West Virginia Advocates. Car wrecks and falls cause the injury most often.

"The damage is instant," Hausch said. "And nobody expects it."

The injury can range from mild to severe. It can cause depression, personality changes, memory loss, blurred vision, speech problems and loss of coordination.  

The Brain Injury Association of West Virginia estimates that of the state residents who survive a traumatic brain injury each year, 600 will have a long-term disability. 

Before the accident, Berkhouse worked as a SkyWest Airlines customer service representative at Yeager Airport. The job let him travel, and the diehard Mountaineer football fan went to as many games as he could.

He used to play softball and flag football. Now, he must learn to walk again.

At home, there's so much time to think, Berkhouse said.

"I have to learn how to lay here," he said recently, sitting in a wheelchair next to a hospital bed in his mother's Mink Shoals living room. "I have my computer and video games, and that's how I get through the day."

He forgets things easily. Before he left for Virginia, he couldn't be left alone in the house.

His mother, Geneal, is grateful she is healthy enough to care for him.

But at 75, she said, "it's hard on me with my age."

Berkhouse had no health insurance when he got hit, so he relied on Medicaid. After he attended 20 rehabilitative therapy sessions, he got a letter saying Medicaid wouldn't pay for any more of them.

From the beginning, his family, friends and co-workers rallied around him. They sold hot dogs and baked goods. They organized pig roasts and horseshoe tournaments.

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Posted By: fayettegirl (9:35am 07-12-2009)
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It is very sad for the individuals and their families who are struck by TBI. The victim is truly never the same however that doesn't mean they can't be productive members of society. It takes hard work and resources in WV are very slim. All of us need to be aware of the pain involved for these individuals and their families. The next time you have a friend injured (and there will be a next time) remember that they do not understand why you aren't treating them the same. It is one of the saddest parts of the injury to feel the heartache of loneliness because people abandon these victims. Just speak to them, help them, show compassion and above all pray for them.

Posted By: Damion (8:07am 07-12-2009)
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If there is one group of people with disabilities who DHHR neglects more than those with mental illness, it is surely those who have suffered serious brain damage. This disgraceful situation is easy to understand once you realize it has nothing to do with the state's responsibility in providing care and treatment. It is solely to save money. Don't increase the budget. Period. Use any justification and every delaying tactic at their disposal not to take appropriate action. Meditation-sure; form a committee-fine; hire consultants-hey, two or three at a time; fight adverse Decisions-absolutely. And on and on. What the Governor fails to do is evaluate the systemic failure of DHHR to solve problems and accomplish real service goals rather than maintaining the status quo at all costs. There is a lot of money currently being squandered in the same old manner to the same old people with no real changes being made.
And now it looks like more of the same is all that we are going to get. Sad.

Posted By: ComeOnNow (12:56am 07-12-2009)
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Those with traumatic brain injury in WV are doomed by the State & their supposed advocates. Treatment to a large degree was available in WV at the West Virginia Rehabilitation Center in Institute, until the state closed it. It was a very comprehensive center years ago until they tried a profit driven model of operation. They also had a Federally funded TBI program the last few years that way mostly a dog & pony show to draw down Federal dollars. They spent lots of money on fancy things & staff, but treated very few patients. Mismanagement at its best ran it off the tracks. Speaking of mismanagement & Federal grant dollars being wasted, West Virginia Advocates (their director is mentioned here, Clarice Hausch), is a scandal plagued organization with a long history of internal problems: their board & other leadership lack the ability to properly advocate for the disabled. Very few grant dollars go to actually advocate directly.

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